My Art, My World

Written by Rita Winkler with Helen Winkler and Mark Winkler

Art by Rita Winkler

Second Story Press

978-1-77260-214-2

32 pp.

Ages 6-9

October 2021

 

This is not a story. This is a life. It's a life well-lived by Rita Winkler, a young woman with Down Syndrome. She lives it with colour, with activity, and with heart. And she tells her life through her art, hence My Art, My World.

From My Art, My World by Rita Winkler

Rita introduces herself through a self-portrait and then discusses the making of her art: when, where, why. She reveals her activities like taking the bus, clearly the TTC, to her job at a coffee shop, and participating in dance class and yoga. She recounts anecdotes of seeing fish in a bag, dealing with pesky telemarketers and visiting her uncle in New York City. And she always represents it in her art.

From My Art, My World by Rita Winkler

But more than just capturing a moment in time, Rita Winkler expresses herself through her artwork. She recognizes how her art changes through the seasons, and how the season makes her feel. From summer flowers and Halloween, through Remembrance Day and New Year's Eve, Rita Winkler tells us how she feels through her art which is often, though not limited to, paint.

From My Art, My World by Rita Winkler

With a boldness of intent and line, Rita Winkler invites us to meet her and enter her world, one of artistic temperament, not of disability or limitations. It's a testament to what is and not what isn't and that message of acceptance is paramount to the verve in Rita Winkler's life and My Art, My World.

Last Words

Written by Leanne Baugh

Red Deer Press

978-0-88995-576-9

320 pp.

Ages 13+

2019

"I'm sorry" are the last words that Will Szabo speaks to a stranger on the Lion's Gate Bridge before he jumps to his death, but they are the beginning of a new chapter in sixteen-year-old Claire Winters's life as she struggles to understand his suicide.

Just before he jumped, Will hands Claire his cell phone–complete with passcode taped to the back–and this becomes the focus for Claire's probe into his death. She discovers a suicide note, emails, voice mail, text messages and more that help her reconstruct his life. But learning about the young man just leads her to question the way of the world and what hope there is. In fact, Claire's own life begins to unravel as she delves deeper, causing riffs with her boyfriend Ty, friends Izzy and Declan, and straining her relationships with her parents and older sister Belle who is moving to a group home–Belle has Down Syndrome–while also impacting her passion for painting. She speaks to different people, trying to get advice as to how to proceed, including from Paul, the executive director of a hospice, who suggests that

"Sometimes the best way to get to the other side is to go right through the pain, yelling, kicking, and screaming like a crazed fool." (pg. 173)

Then Claire meets Kiki, a teen with cancer, who sees life as a gift and a challenge that she will not deny and Claire begins to wonder who got it right.

It's not unusual for young people to look at the world and see the good and the bad as extremes. Except for a person like Kiki who is on the cusp of losing her life, many become distressed by break-ups and environmental disasters and changes that compel them to take a different perspective from the one with which they've become comfortable. They're not wrong to be distressed but they might not always see the circumstances in the realm of a big picture that might suggest these situations are not worth ending a life.

"...if there's meaning in life, there also has to be meaning in suffering. They go hand in hand." (pg. 241)

Leanne Baugh does not take sides. She doesn't make Claire seem over-the-top in her pursuit of Will's story or a victim of wrong-place-wrong-time circumstances, though it was unfortunate that Claire had to witness something so shocking. Leanne Baugh could have made Kiki into a saint who fights her illness with valour and perseverance but she doesn't. And she certainly doesn't depict Will as a victim or a young man in control of his own life. The paths for these characters, as are our own, are never set in stone and suggesting otherwise would be unfair. Ultimately, Leanne Baugh twists her plot to enable Claire to see her life and those of Will and Kiki from a different perspective, for good or bad, and recognize that, as Emily Dickinson is quoted, "Hope is the thing with feathers."

Born With: Erika and Gianni

by Lorna Schultz Nicholson

Clockwise Press

978-0-9939351-7-6

231 pp.

Ages 13+

March 2016

Clockwise Press launched its young adult series One-2-One with Fragile Bones: Harrison and Anna (2015), also by Lorna Schultz Nicholson, focusing on the relationship between two teens in the Best Buddies program, a world-wide organization that aims to help individuals with intellectual and developmental disabilities integrate successfully  into their communities. Born With features two other teens, both with a love of musical theatre: Erika, a fourteen-year-old born with Down Syndrome and Gianni, a teen who’s struggling with his sexuality.  This is their story, a powerful one for their trueness of thought, action and self-appreciation.

Erika and Gianni both audition for the school’s musical Grease. While Erika is thrilled to get selected to sing and dance in the chorus for three songs, Gianni is disappointed to get slotted for the comedic role of Eugene, losing the coveted lead role of Danny Zuko to the more athletic but less talented Richard.  Also cast are Erika and Gianni’s friend Sonya, as Sandy, and a boy named Bilal to whom Gianni is secretly attracted.

Gianni is determined to be stellar in the role of Eugene and to help Erika rehearse her lines and steps, ensuring that both will be successful.  But the two teens have more on their plates than singing and dancing. Erika’s father has ALS and his condition is worsening, and, though she takes her responsibilities for him very seriously, all she wants is for him to see her dance.  On the other hand, Gianni is coming to terms with his sexuality and what he wants out of life, convinced he already doesn’t fit his father’s dream for him, and that he can’t be himself until he is able to graduate from high school and leave his big Italian family.  But secrets have a way of becoming revealed, especially when Erika has been tutored in not keeping secrets, even if they are someone else’s personal business.

Born With takes on the monumental task of showcasing characters living with aspects of their lives over which they have no control: a genetic disorder, and sexual orientation.  Erika has a great understanding and acceptance of the strengths and limitations of her genetic disorder, and works to meet her needs, advocating for herself while celebrating in her own successes.

Sometimes people don’t think I can be serious or that I can learn things, but I can–I can do lots of things after I’m serious and listen. And focus. Focus. (pg. 9)

Likewise, Gianni has compassionate insight into Erika but he has yet to accept himself, confused over his sexuality, still processing what he is feeling and with whom to share that secret.

Tonight Erika’s honesty was creating chaos in my life.  But, seriously, what difference did it make who I was in the school musical?  That was a relatively little issue in comparison to the rest of my life. (pg. 190)

Both Erika and Gianni must navigate how others feel about them and make them feel, while dealing with family, friends, peers, ignorant bullies, and others.  The high school years are tenuous enough but Erika and Gianni have struggles that many of us could not imagine, and yet they dare to be themselves and are able to thrive.  By wrapping their stories in the joyful musical that is Grease, another story about being true to oneself, Lorna Schultz Nicholson has written an inspirational and triumphant story of acceptance in Born With: Erika and Gianni.